“Fluid Wouldn’t Cause this Kind of Loss.”

On this very rainy afternoon, I swooped into the school’s office to find my sweet boy waiting patiently with his backpack amongst the other children being picked up for various doctor appointments or raging fevers. He giggled when he saw me and off we went to the ENT, along with a snoring two year old strapped into his car seat. After hearing some mixed messages these past weeks about my son’s hearing, I was anxious to find another opinion and to get to the bottom of it all.

The ENT’s office was efficient and, within minutes of arriving, paying our co-pay and submitting our paperwork, I was sitting across from the ENT herself. She was smart (I could just tell she was), she had a dry sense of humor and a kind, approachable personality. While clearly not one to be condescending to her young patients, she was also not one to shy from the facts with the parents either. We took the time to go through his history in detail. And then with a half smile and a calming approach, she examined my son’s ears.

ear1“Well. Fluid wouldn’t cause this kind of loss, I’m afraid.” Yes, she did see some fluid but not enough to warrant the sort of loss he is experiencing. She went on to explain the test results to me. There are two sorts of reasons for  hearing loss. In layman terms (because I really don’t know any other sort of terms yet), loss can be a result of either something external which affects the conduction of sound (fluid in ear, wax, ear drum issues) or the loss is a result of the nerve not transmitting the sounds accurately. The audiologist had tested for both sorts of loss in his left ear. To test the nerve itself, she had measured his hearing through the bone. And since both tests in the left ear showed the same results, it is likely his loss is a neural issue. To that end, some inner ear fluid would not affect the neural test either.

So what does that mean? This sort of loss is permanent. And yes, there is a chance it could get worse.

The good news? His other ear is a rock star. She said that because we (parents and teachers)  have not noticed any loss before this, his right ear is probably doing an amazing job compensating for the left ear’s loss. Usually parents see behavior changes, confusion, less participation in school, lower grades, etc. with hearing loss. And while he isn’t the chattiest kid around (yes, he IS related to me, I promise), he has been doing fantastic at school and has never given any of us any obvious signs he can’t hear well enough.

Will he need a hearing aid? He might. We’ll see. She thinks that since he is coping just fine as is, an expensive hearing aid might just get lost and not worn anyway. She doesn’t think its worth it. Yet. She did mention that she wants to retest his ears in two months and maybe do a CT scan of his inner ear structure. We’ll reconsider the hearing aid possibility then.

So how do I feel about all this? I’m disappointed. I wanted his hearing issues to miraculously clear up with a little Claritan. (What parent wouldn’t?) But I am also not surprised. It just didn’t seem to make sense that fluid would explain months of failed hearing tests. I knew it was too good to be true.

I am also not disheartened. His right ear is getting it done. As I have mentioned before, he seems no worse for wear. He has been coping well with this loss all along and he is doing great at school. Shoot, without those audiologist results, we never would have even known he had a loss in the first place. Besides, so many readers, friends and family have pointed out that a mild or moderate hearing loss is kind of no big deal. Really. He’s good. Especially if his loss does not change.

But that’s the key. That he stays as is. That his hearing loss does not get worse.

While I am writing this, my five year old is watching Pinky Dinky Doo. (Nothing like a little after-school downtime with Noggin.) And do you know what he just did? He turned the volume up, slightly. And the other day I noticed that while he as speaking to his beloved uncle, he had the phone on his left ear and almost immediately put the speaker phone on.

Huh.

Oh. Right. I get it now. Or at least, I am trying really reeeeally hard to get it. Maybe I am only now noticing his hearing behavior when I never did before. But this is a learning process. That’s what parenting is after all. We try to learn to be better parents everyday. I am simply just adding one more thing I need to get better at to the list.

6 comments ↓

#1 Becky on 05.18.09 at 1:43 pm

Hang in there. Sounds like you’re doing great following his lead. :)

Becky’s last blog post… What is this?

#2 Mediamum on 05.18.09 at 1:47 pm

Both applause and hugs for you.
It’s a journey that will hopefully be a little easier as you now will really notice if something different happens.
Many kids don’t have it picked up. You not only appreciated it, but took all the extra time, effort, and expense of chasing it down and continuing to do so. In this situation, I reckon you, and your fabulous son, rock.
Isn’t it weird how when you meet some medical practitioners you get some sense of ‘this person has got it going on’ and with others it’s ‘I don’t know if you’ve got any clue at all’. Glad this ENT was the former.

Mediamum’s last blog post… Building a Strategic Promotional Plan

#3 starrlife on 05.20.09 at 5:07 am

Sounds like a great ENT! It’s a good thing to know even if not disruptive right now. My daughter has some hearing loss, mild and her school uses what is called an FM system which is a microphone/speaker, the mike is hung around the teacher’s neck. It’s not id’d specifically for Kayli so it’s not stigmatizing and the teachers all love it, they report that ALL of the kids seem to benefit and pay better attention. Good Luck!

starrlife’s last blog post… Smell

#4 Dan Schwartz on 05.22.09 at 9:34 am

Go back to your post on the 15th about mixed messages and see my comment #4 and you’ll see I nailed it.

Could you please post a copy of the audiogram, or the data from the right ear? I’m especially interested in the speech discrimination scores, SRT, and MCL scores from each ear tested separately (due to brain plasticity — More below). If you prefer, you can email it to me (email address in Twitter DM to you).

Unilateral hearing loss is especially insidious, because speech discrimination is good in quiet (which explains his normal language development), but falls into the toilet with background noise as binaural localization is lost.

Poor speech discrim is also common in classrooms with a unilateral loss, as the linoleum or other hard floor increases the reverberation time T(r) to above 600 milliseconds, “smearing” the sound arriving at the ears.

Both of these make *listening* (not hearing) more tiring, as he has to concentrate harder.

Add up the loss at 500 Hz, 1kHz, 2kHz & 4kHz: If the total is 80 (20 dB pure tone average) and/or any of the thresholds is 30 or higher, then a hearing aid trial (evaluation) is in order. Depending on the severity of the loss, it need not be an expensive digital aid, as a properly fit $500 basic analog will do the trick for mild to moderate *unilateral* hearing loss.

In fact, the $79.95 Songbird throwaway hearing aid does not require an audiologist to fit it. Check it out: They even have a 30 day free trial.

[And, it works quite well: My electrical engineering colleagues up at Sarnoff Labs in Princeton, NJ, did a great job engineering it. Sarnoff Labs is the new name given to the RCA David Sarnoff Research Labs when GE spun it off in 1987; and Songbird started out their in their hi-tech "incubator program. They also received $40 million in a 2nd round of venture capital last October. I know several people who use them, and they are VERY satisfied; and indeed get 400 hours of use before they get another.]

Oh, and one other thing: The brain’s “plasticity” in adapting to a loss of hearing in an impaired ear, essentially disconnecting it. Depending on the severity of the loss, his brain reconnecting it can take a few weeks for speech discrimination to pick up.

Dan Schwartz,
Cherry Hill, NJ

Mr. Schwartz is the host of The Daily Telegraph (London) Hearing Blog

#5 Corina on 05.25.09 at 5:23 pm

Fantastic combination in a doctor, soothing, yet not afraid to tell it like it is…..

Hang in there. You are a fantastic mom and you are doing all the right things by your boy. My hope is that everything stays the same for him.

Corina’s last blog post… Weekly Winners – 5/16 to 5/23

#6 mlshop on 04.29.10 at 2:27 pm

I had a great time reading this post, you are a great blogger and you sure know alot your field… thanks alot

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